WE ARE HOME!!! We got the final paperwork signed at 7:30 last night and were on the road at 7:35. Traffic was light and it took just under 6 hours. Ironically I got home exactly 3 weeks to the hour/day of when I left. A lot happened in those 3 weeks. There were ups and downs, but when I look back I could not be more grateful for the care we received and that Kylie has a heart that is functioning the way it should. I am thankful for family and friends who helped at home and at the hospital. There was meals brought to our house, cards to encourage us, care packages, safe travels for family traveling back and forth, rides and homes for Kate, texts checking in on us, and most of all a peace that only comes from our Father above. We are BLESSED! Please continue to pray for healing. The blood clot is very painful. I also need to give her an injection 2X a day. This is hard on both of us. Today she was back and forth from the sofa. Would play a little and then rest. Thanks to each of you for following along on our journey.
Blessings and Peace to each of you this holiday season!
Kylie's card wall at the hospital.
Good Bye Boston Children's Hospital.
Kylie's favorite blanket and spot today.
Thanks to family and friends who decorated for Christmas, made
Kylie and Kate's bed room special, and even hung Christmas ornaments in our room.
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