We are praising the Lord as our little girl's smile and sense of humor has returned. We were teasing daddy tonight by hiding his ice cream. No this one was not medicated and yes he does have a love affair with ice cream! Don't tell him I said that! Now back to Kylie. Yesterday was a fantastic day with lots of smiles, walks, and eating more. Today started out that way but pain in her left thigh took her joy. They did an ultrasound and discovered a blood clot in a superficial vein. They assured me this is not dangerous but it is painful. After some advil and hot packs Kylie's smile is back. We had gotten approvals for discharge tomorrow, but this could change things a bit. We will know more tomorrow when her cardio team sees the ultrasound. Please pray this clears up quickly and we are on the way home. This trip has felt long, but we have much to be grateful for.
The real Kylie smile returned yesterday.
Daddy painted Kylie's toenails before I got in this morning.
Not bad...
The Turkey Hill Ice Tea is almost gone...time to go home!
No Turkey Hills in Boston...
We visited a winter wonderland Party today on floor 1. They did a fantastic job
of making the kids feel loved. Crafts, stuffed animals, hot chocolate/doughnuts,
and pictures with Olaf...
A note from Kylie's 3 week old roommate who got to
go home for the first time in his life. Now we are
sharing a room with a cute little spanish girl who
is still watching TV and it's almost 11pm...
The true meaning of a messy bun. Seriously a shower cap head washing and
a brush was no match for this tangle. I need a whole bottle of cream rinse
or detangler when we are home!
A gift from a dear friend that came at the perfect time. God knew...
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