Thursday, December 1st

The day has felt like a couple days.  Not necessarily bad just LONG.  At ten tonight they took her off her sleeping meds and then removed her from the breathing machine.  I could almost cry (which I've done a lot of in the last 24 hours) how brave this little one is.  I could not be prouder of her.  She is comfortable resting while the nurse massages her back. The day started with surgery on...then off...then on again.  Kylie was running a fever over night they were concerned about.  After blood work they felt it was from the fluid in the partial collapsed lung.   And surgery in the long run would be good so they could clean out both lungs.  I noticed yesterday she really started to feel worse as the day continued.  A HUGE blessing was they were able to give her a little sleeping medicine right here in the room that took the anxiety away.  So she gave the tiniest of smiles and lifted her little hand off the bed to say good bye.  Why oh why could I not have some of that medicine? They took her at 11:45 and we didn't get to see her till 6 pm tonight. They ran into a couple issues but over all it was a success.  A lot to be thankful for today.  Our prayer requests for now would be no infection and her lungs would stay clear after they remove the drainage tubes.  I feel like a broken record, but again thanks for praying and doing this journey with us.  

OR nurses heart shaped bandage almost made me cry

Overwhelmed with our card wall

Grandma took this picture back at the Yawkey house.  Mr. Dee is baking with the kids. This kind gentleman comes and bakes with the kids every Thursday night.  I'm again over come with emotion when I think of all the people serving at the Yawkey House.  This home has been our home

for over  a month since last April.  Going back to a motel would have been so different.