Tuesday, April 19th
I'm not a night person so here it is after 10 pm and I feel like I can't put more than 5 words together.  So bare with me as I write a few jumbled sentences. We had a fun two day of traipsing around Boston.  It was a real treat to be here during the marathon.  To see amputee's, blind people, a dwarf, and people of all shapes and sizes working so hard was inspiring.  The energy and excitement was contagious! Today was a full day at the hospital.  We finally met our surgeon, Dr Del Nido, and instantly like him. He was kind, explained things on our level, and was patient with us.  Our surgery is set for 8:30 am tomorrow with an arrival time of 7 am.  The surgeon will not be doing the full repair tomorrow, but splitting it into 2 surgeries, both of equal intensity.  The second one will be done 3-12 months from now depending on how her heart does.  Kylie has been only using half of her heart since her surgery in China at 3.  So to do all the repairs and expect the half that hasn't worked for 3 years to do the full job is asking a lot.  Dr. Del Nito said if she was younger he would do the full procedure but he has seen too many at her age really struggle, and some they have had to reverse, and do it again.  This was hard for us but what he said made sense and ultimately we want the best for Kylie.  I talked to two families today at our Boston home as Kylie calls it, and one has been her 6 month and the other 9 months.  I can't even imagine.  It felt like God was showing me if they can do it, you can too, stop whining.  Yes I've had a few silent pity parties for myself today. Tonight we had a time of prayer with a dad from the southern part of Africa.  It was a sweet time.  His son V is also having surgery tomorrow.  Another little China baby girl is having surgery too.  I do not know her name, and they do not speak English.  Please also pray for these families.  These next days will be extremely hard for us.  In six months we have fallen in love with Kylie.  The thought of her having go through this is overwhelming.  Thanks for your prayers!

Sunday was a good day...Daddy arrived

walk in the park...

PJ's & bear from Grandma's friend

Boston marathon...truly inspiring

Kylie's new friend

day at the hospital for pre op

opening letters with Kylie tonight...all smiles